The site aims to be a hub for the international duchenne community – linking up campaigning organisations, people living with duchenne, researchers and decision makers to campaign for access to medication and international standards of care.
The site is maintained and curated by Action Duchenne who are based in the UK.
If you think that we do not cover important aspects of this campaign, or you would like further information on any of the topics discussed then please feel free join our conversation about duchenne. We look forward to hearing from you.
You can also email our editor:
Andy@actionduchenne.org
